|Dignity, Voice, and Personhood within Pediatric Terminal Illness Narratives
As a child has a limited capacity to act, medical decisions including the cessation of treatment are typically made by their parents. This incapacity and lack of autonomy is highlighted through pediatric illness narratives, illustrating a child’s lack of voice as detrimental to their sense of self. Pedagogies and fictional texts also reveal the pediatric patients’ desire to be normal, their risk-taking behaviors as a form of agency, and their resilience in face of their mortality among others. Through which, one aims to expound on the notion of dignity and the preservation of personhood at a child’s end of life, contrasting narrative medicine with the biomedical model’s singular focus on curative treatment.
Ivy Chua is a Masters student at Nanyang Technological University, where her multi-disciplinary research examines dignity, voice, and personhood within pediatric illness narratives. Her research interests include pediatric illness, palliation, doctor-patient discourse, and mental health within contemporary literature.
|Cat Chong is currently a PhD student at Nanyang Technological University, Singapore where their work investigates stories of sickness in female authored Singaporean and SE Asian illness narratives. Her interests include ecology, feminism, contemporary poetics, and disability studies.|
Their work will take a comparative approach to female authored illness narratives in Singapore and Southeast Asia I will investigate how intersections between gender and medicine have impacted the experience and written expression of illness within the genre of pathographies and illness narratives. To date, limited critical attention has been paid to illness narratives from outside of the UK and USA. Their research will therefore engage with the intellectual imperative to provide greater focus on Singaporean and South East Asian women’s writing within the emergent medical humanities field.
|Xiaoya ZHAN is a current
Ph.D. student at Nanyang Technological University, Singapore. With the
backgrounds in bioarchaeology and evolutionary anthropology, her research
mainly focuses on the parasitic remains from archaeological contexts of ancient
China. With the focus, she attempts to explore the health conditions, hygienic
practice, daily behaviors, and migrations of ancient residents. |